Friday, 30 March 2012

Resources In Mumbai for Autistic and Mentally Challenged Children


2nd April: World Autism Awareness Day

Below are some of the centers that I have heard about for autistic and mentally challenged children. The overall reviews of these centers are good and can be helpful. J

SOPAN (Society of Parents of children with autistic Disorders) – Samarpan (Jogeshwari)

Support for Autistic Individuals – SAI (Santacruz)

Communication DEALL
Charni Road

S.P.J Sadhana School (Breach Candy)

JBCN PAN Academy (CARE CELL) (Lower Parel)

Ummeed Child Development Center (Lower Parel)

Child-N-You (Thane)

Kshitij (Bombay Central)

Anchorage (Mahalaxmi)

SRCC Centre for child development (Haji Ali)

Little Angels Schools (Bandra)

Forum for Autism (Colaba)

Khushi Pediatric Therapy Centre (Andheri)

Drishti (Andheri)

Skills and Ability School (Nerul)
Sector 11, Nerul, Mumbai 400 706

Disha Counseling Center (Dadar)






Wednesday, 21 March 2012

Denial in Autism


Denial in Autism

 In my experience one of the most common roadblocks to therapy success is denial in parents of children with autism and other developmental disabilities. It’s a hard truth to accept and one needs tons of courage and maturity to accept it as a challenge and work upon it to improve the child’s condition. It is devastating and horrifying for the parent initially but one needs to come out of this vicious circle of denial which only causes a downward slope in the child’s progress.
Some of the most common phrases used by parents in denial are “Its just a delay”, “He/She is Different”, He/She is smart, the behavior is intentional” and “There is nothing wrong at all, it’s just been blown out of proportion”.
Denial seems to crop up because of the following reasons:
Convenience: It is convenient for a parent to say “it’s just a delay, so many children talk late and respond late” than to accept it, face it and have the potential to change it.
Social Stigma: Mental disorders do attract a lot of social stigma even today. Though the situation is changing and some people are now open to the idea of taking help, keeping their ego at bay and working on the problem rather than isolating oneself to avoid being questioned or feeling the fear of being ridiculed.
Guilt: Many at times parents whose child has been diagnosed with autism feels guilty about being responsible for the child’s condition. This often leads to feelings of depression, helplessness, isolation, pretence and self blaming (I must have boozed/smoked during pregnancy and so this happened).
Blaming: One of the reasons for denial is also seen when one spouse blames the other for the child’s condition. For e.g. “because XYZ fought with me during pregnancy so much and I was under so much stress that it resulted in a child with a problem”.
The negative and disastrous consequences of denial are neglecting or disregarding professional guidance and suggestions, delay in treatment and early intervention, poor prognosis (scope of improvement), worsening of the condition and thereby putting the life of the child at stake, and absolute waste of precious time.
In my work experience I have had the best results with parents who are not in denial, who are accepting of the problem, patient to bring about a change in the child for his//her betterment, understanding their child’s needs, parents who feel it is not the end of the world for their child but a challenge to bring about a difference and track the untaken path so that their child can live fully, happily and independently.
            I believe that denial results only in destructive delay and it refrains the child of the help he/she needs. Nothing is more important than the child and definitely not the so called ‘social prestige’.
I sincerely pray that each parent upon realizing that there is a problem with their child should immediately consult professional help, orient themselves with the problem and understand that it is not about tagging the child but to help the child to bring out his/her best under the prevailing circumstances.

“The worst lies are the lies we tell ourselves. We live in denial of what we do, even what we think. We do this because we’re afraid”. Richard Bach

Thursday, 8 March 2012

FAQ'S on Autism - 2, Part II


FAQ’S on Autism – 2, Part II

In continuation with my previous article, FAQ’s on Autism – 2, Part II, I will elaborate further in the current article on few more characteristics noted in children with autism.
Stereotyped Behavior: As mentioned in the previous article, the play pattern noted in children with autism is repetitive, non exploratory, ritualistic, rigid and monotonous. Stereotypes, mannerisms, grimacing, muttering are often present. A change is not welcomed and it can evoke temper tantrums, apprehensions and panic. Few of the cases that I handled had peculiar behavior of arranging things and restricting the same led to temper tantrums. They also have strong attachments to their belongings and rooms. Temper tantrums like head banging, inconsolable crying, biting, injury to others and self, rigid posture, self isolation are also noted in many cases. Stereotypical behaviors like hand flapping, finger tapping, rocking, rolling and making sounds are common.
Mood Swings: Many children with autism exhibit sudden mood changes with burst of crying and laughing spells without any apparent reason. Few of the children that I worked with broke into an aggressive spell at the drop of a hat and within five to ten minutes were back to normal as if nothing happened. For e.g. one child with whom I had worked threw an aggressive spell and then when I told him to calm down and be quiet, he said “Be quiet, chup, hass mat” and then broke into a sudden non expected laughing spell. Unpredictability is a noted feature in many children with autism.
Sensory issues: These children very often either over respond to some stimuli or under respond to other sensory stimuli. For e.g. many children with autism have either hyper/hypo sensitivity to tactile, auditory, visual stimuli, light and pain. For e.g. a child having hyposensitivity to sound may not be able to tolerate even someone talking in the same room as he is in or can have a behavioral explosion in noisy places. They cannot perceive danger and this often results in self injury.  Some children also seek a lot of vestibular stimulation like rocking, swinging, jumping on the trampoline etc.
Other Behavioral issues: Aggression, temper tantrums as mentioned above, Hyper-kinesis (over active restlessness – hyperactivity), self injurious behavior, poor attention span, sleep disturbances, enuresis ( repeated inability to control urination) and feeding and eating problems are commonly noted among children with autism.
Associated features: children with autism often exhibit poor muscle tone, poor motor planning, food allergies/sensitivity and toe walking. Gastrointestinal problems like constipation, loose bowel, burping is often present. There is a lack of concern for personal health like bathing, brushing, combing hair. Some children have exceptional memory or calculating abilities usually beyond people of their age and mental level. For e.g. memorizing train schedule charts, a series of songs or playing tunes.
These are some of the features found in children with autism. They usually exhibit some of these if not all. The pattern and timing of occurrence of these features is not the same for every child with autism.
I would end the article on a quote by Ellen Notbohm, Patience. Patience. Patience. Work to view my autism as a different ability rather than a disability. Look past what you may see as limitations and see the gifts autism has given me. It may be true that I’m not good at eye contact or conversation, but have you noticed that I don’t lie, cheat at games, tattle on my classmates or pass judgment on other people? Also true that I probably won’t be the next Michael Jordan. But with my attention to fine detail and capacity for extraordinary focus, I might be the next Einstein. Or Mozart. Or Van Gogh.”